Motor Neurone disease diagnoses must improve says Louise Bours
Improvements are needed to the ways in which people are diagnosed with motor neurone disease, says Ukip health spokesman Louise Bours.
The BBC reports today (link below) that 1 in 5 of those with MND had to wait up to a year before seeing a brain specialist.
Such delays stop sufferers getting early care, says a report by the MND Association, which collected data from 900 patients.
The charity recognises that a diagnosis is “notoriously difficult” to make but is urging GPs to be more vigilant about the disease.
There are around 5,000 people in the UK with MND, which is incurable.
Two in five people interviewed in the survey said they had visited their GP two or three times before it was suggested they be referred to a neurologist.
Ms Bours, MEP for the North West, said: “Motor neurone disease is relatively rare but is nonetheless absolutely terrible for those who develop it, and also a massive strain upon those who care for sufferers.
“I fully appreciate how difficult it must be for GPs to spot the symptoms but it is crucial that all avenues are explored at the outset rather than further down the line.
“Our population is rising through uncontrolled immigration and of course many people are living longer than ever before, and so there is more pressure than ever upon our GPs.
“MND is an example of where the standard 10-minute consultation with a doctor is clearly inadequate, allowing it in some cases to go undiagnosed for up to a year – a timescale that is clearly unacceptable.”